Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
There are approximately 30,000 Americans living with Cystic Fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them and hope you will support us in our efforts.
Thanks to the CFF and their ongoing research, many amazing treatments and medications are in the drug development pipeline. In 2015, the FDA approved Orkambi, a medication that tagets the underlying cause of Cystic Fibrosis in people with two copies of the most common CF gene mutation. In October 2019, the FDA approved Trikafta, the first triple combination therapy available to treat patients with the most common cystic fibrosis mutation.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By participating in a virtual walk on June 5 (65 Roses Day), we are helping add tomorrows to the lives of people living with Cystic Fibrosis.
Please support us by making a donation to our Great Strides fundraising campaign today!
Help us reach our fundraising goal! Your gift will help add tomorrows to the lives of people with Cystic Fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.