John William Buffone joined our family on Friday April 19th, 2019. The following Friday we received a call that changed our family’s path and has since given us a new appreciation for modern medicine and research.
JW was diagnosed with Cystic Fibrosis, a rare, genetic disease that causes persistent lung infections and limits the ability to breathe over time. We are so grateful for our care team in Atlanta and the Cystic Fibrosis Foundation.
Generous donations that fund research and medical development have improved the lives of those living with CF and give hope that healthy, long lives are possible.
By donating and walking with us in Great Strides, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community. Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together and make a difference in the lives of people living with CF.
Your participation and support will help us get one step closer to ending this terrible disease. Please join us in making CF stand for Cure Found!
Thank you! Jeremy, Katie and JW Buffone
Please follow our team on Instagram @buffbreaths and visit cff.org to learn more about this life threatening disease.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.