WOW, what an incredible year it has been...Thank YOU to all of Grayton's Guardians! We have so much to be thankful for, especially Grayton's health. We are overjoyed by support from our family and friends come together in support Grayton. All of your hard work is incredible...together, over the past several years we've raised over $290,000 through Great Strides, Peachtree Society, Cycle for a Cure, and so many other fundraising events. There have been so many advances in new medicines and treatments. However, we won't stop until there is a cure for Grayton and others fighting CF. Join us on our fight!
Grayton's daily regimen involves taking pills (540 pills a month) before each meal in order to give his body the ability to absorb the fat and nutrients from food. Putting on weight is a constant challenge for those living with cystic fibrosis, especially for G as his pancreas has no functionality. Twice everyday he does his breathing treatment and an airway clearance treatment called CPT (Chest PhysioTherapy). He wears a vest that's connected to a machine that will shake him to help move the mucous in him lungs. He spends 30 minutes twice a day strapped to this machine (30 hours a month). As you can imagine, it’s a challenge to keep a 3 year old entertained and constrained during this time. His favorite vest time activities include stacking shapes/blocks and reading a book about trucks….especially backhoes! Dada is also trying to get him to play a harmonica to help with lung capacity. I secretly think, he just wants Grayton to jam with him while he plays the guitar. He also take an acid blocker 2X's a day and liquid multivitamin are also necessary to his daily routine and weight management.
There has been so much development in the last few years and we want to continue that momentum by adding tomorrows to all of those living with CF. The real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Support us by making a donation to our Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Ways to Help
To walk with us: click on the 'Join our team' button and select 'walker'. From there you can make a donation and/or start your fundraising. Joining our team does not require a donation or fundraising, however, fundraising IS encouraged! The more resources we have for research the better!
To donate: Search for Grayton's Guardians Great Strides Atlanta 2019 to make your donation or select a team member from the list below. All donations are tax deductible.
To Help us fundraise: Click on the 'Join my Team' button and select virtual walker. You folks are our online force who are driving donations in your community and diligently bringing in money. Once you register you will then be given a link that you can share with friends and family.
Help Share Grayton's story: Telling Grayton's story is HUGE in educating others that a cure is needed and even better when a face is put with the cause.
Thank you for the constant prayers, hugs and words of encouragement for our family. Your support and donations are giving us everything our family needs-more memories with our Grayton.
Welcome to Grayton's Guardians, y'all!
Please support us! Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.