Olivia is 2.5 years old and we are so proud of the little girl she is turning into. Her favorite activity is dancing, she enjoys playing with her dolls, building with blocks, coloring, unicorns and cats and being outside. She loves to play with her big brother Owen more than anything else! She is the best little helper and is full of sass and personality!
Olivia also takes multiple medications every day just to survive. Before she can eat anything, she has to take her enzymes to digest her food and retain any nutrients. She takes around 12 pills a day. She also has to do 2 hours of chest physio therapy everyday. Olivia does all of this everyday without any protest, which is remarkable to us being only 2 years old! But...This is just the tip of the iceberg - We are fortunate and blessed that Olivia is healthy right now, and so treatments for her are minimal. Yes, all this is minimal compared to what she will eventually do everyday and what many living with CF already do. Many spend hours a day doing treatments and take handfuls of pills, while others need to spend weeks in the hospital on antibiotics. This is why we fundraise. This is why we are apart of Great Strides!
Right now, there is no cure for Cystic Fibrosis. Treatments, medications and medical advancements have helped move the life expectancy to 47 years – but that is not enough! When you donate to the Cystic Fibrosis Foundation, you are helping to fund research that adds more tomorrow to Olivia’s life and everyone else with Cystic Fibrosis. You are also helping to fund a cure. And we need a cure!
Olivia was born in September 2017, and it was one of the greatest days of our lives. Our family of four was now complete and we couldn’t be happier! However, when Olivia was just 9 days old, we got a phone call that changed everything for our family. Olivia’s newborn screening came back and she tested positive for Cystic Fibrosis. While we are devastated by this diagnosis, we are committed to not letting this disease define or overcome Olivia. In these 2 and a half years, we have learned so much and are forever grateful for the community and army we have built around our family.
The smallest donation can make the huge difference.
We are hopeful for the future. We are grateful for all of you who are apart of Olivia’s Team. We cant do this without you!
How can you help Olivia?
Walk with us! Come join us on April 19th and walk with Olivia! Registering for our team and walking is FREE! However, your donations are very much appreciated!
Donate! Any donation that you can make to our team is SO appreciated. No donation is too small or big! $1, $5 $20 $100 every penny counts and brings us that much closer to life extending treatments and medicaitons.
Share! Sharing Olivia’s story is so important to us, as well as to the Cystic Fibrosis community. Even though 1 in 31 people are a carrier of CF, many people do not know much about the disease, and most have never even heard of it! By sharing Olivia’s story, you are spreading awareness about CF and helping to create change and make a difference to the CF community!
Become a virtual Walker! If you can’t join us in our walk, you can still join our team by becoming a virtual walker! Click on “join my team” and pick “virtual walker”. Once you do, you will also be given a link so you can share online to help us raise donations and awareness!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.