On May 4th, my family will walk for the 18th year to continue helping those that are living with CF and to remember those that have lost their battle. A special thanks to all of our family and friends that have supported us over the years! Over the last several months we have received such an outpouring of love and support from so many of you and saying "Thank You" hardly seems to be enough. However, please know that our family will never forget your generosity.
This is our family's 18th year participating in Great Strides. Nicole was born in 2001 and was diagnosed with CF at 4 months of age; she is now 17! Andre was diagnosed prior to birth and he is now 14! They both work extremely hard every day to keep their health on track and live a life that is as normal as possible. As they are getting older, this task becomes more difficult but they never give up. They are the best of friends and a rock for one another. No one can understand what they are feeling or go through better than each other. We are so proud of them and in awe of the their strengh and perseverance.
Medications and treatments for CF have come a long way and over the last few years there have been some great break throughs. The medications that are becoming available are not just to treat the symptoms of CF, they actually aim to correct the defect. In basic terms, by correcting this defect, the defective CFTR protein is able to get where it needs to be in the cell and the sodium / chloride exchange can happen. This will improve the thick, sticky secretions in the lungs and decrease the amount of respiratory infections. The final result is an increase in lung function! Nicole and Andre do not have the proper mutations to fit the criteria for any these medications available, however, they are coming! Studies have just started for combinations that will benefit Nicole and Andre...we are so close!
So, on May 4th, my family will walk for the 18th year to continue helping those that are living with CF and to remember those that have lost their battle. A special thanks to all of our family and friends that have supported us over the years!
Thank you all!
The Gill Family
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress. Your gift is 100-percent tax deductible.
On May 4, 2019 we are walking for Nicole, Andre and approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.