October 8th, 2019 was the day our little Esther’s life changed forever. It was the day we received the call from the clinic informing us that Esther was diagnosed with cystic fibrosis.
Since being diagnosed we have done our part to fight cystic fibrosis and thanks to the many medical advancements made, our girl has the best chance of living a normal life NOW then she would have 50 years ago.
However the only way to truly give our girl the life she deserves, a life without enzymes, airway clearance, fear of germs and the flu, a life where she can breathe freely, is to find a cure.
Join our team and help us get one step closer to a cure for cystic fibrosis! For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devastating disease. We walk in Great Strides for them.
Will you join us?
Great Strides provides a fantastic opportunity for family, friends, students, and colleagues to come together and make a difference in the lives of people with CF. The event harnesses the power of people with a shared vision and encourages collaboration, team building, and leadership, as we take steps to find a cure. We are at a pivotal moment in the history of cystic fibrosis and your support matters. Let’s keep making Great Strides until we have a cure. To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising. By joining our “Team Salty Babe” and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found! While we have come so far, we still have so much work to do. The lives of people with this disease are still cut far too short.
Thank you in advance for supporting Team Salty Babe!
P.S. Due to Esther’s cystic fibrosis she loses a lot of salt in her sweat, that’s why we call her our Salty Babe.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.