Gwen's We've Got You Group

CF awareness
Gwen is 6 years old. Active and a beautiful soul inside and out.
She loves dance classes, swimming, gymnastics, going to kindergarten, playing, friends , family, cats, so many things. She is an incredibly funny person with a great sense of humor. A joy to be with.

This past year was rough with one after another after another “virus” needing antibiotics for bad coughs. Ultimately requiring surgery and hospital admission towards the end of the year despite having started Trikafta in April. 

Gwen was approved early for Trikafta we had some great results in regards to sweat chloride tests. It is all too soon to  see any other impact but we are hopeful that this drug will work with her. 

While classmates and others would get over a cold or other virus fairly easily, hers would linger for weeks. That’s the difference with having Cystic Fibrosis. The thick mucus in her body makes an easy breeding ground for bacterias to take over. She’s missed days of school, dance classes and fun things. 
Praying that each virus with nasty cough isn’t damaging her young lungs.

Each illness she was put on antibiotics in the hopes of protecting her lungs. CF is so different. Nothing like I’m used to at all, or rules you’ve learned with illnesses over the years. She has 1/2 hr vest and aerosol treatments twice daily at a minimum, which she often hates. More often when she’s sick. Enzymes before eating most foods so her body can digest and use the nutrients. Cf clinic visits. Lots of stress and worry for her parents. Huge amount of daily things to keep her as healthy as possible, all while being an active 6 year old.


Life with CF is no joke.
No sympathy needed please. Just raising awareness of what Cystic Fibrosis really is like.
Prayers for a cure

Our Great Strides Story

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