This is our family's seventh year participating in Great Strides to raise money for the Cystic Fibrosis Foundation. Since we started in 2018, family and friends from all over the U.S. have jumped in to support the CF Foundation's commitment to finding a cure for all who live with CF. We are absolutely thrilled to be able to walk again on May 19 in West Haven!
In May of 2022, Natalie started taking the game-changing drug Trikafta! We are so excited she has access to this drug. This drug is a modulator. Modulators work by helping to fix defective CFTR protein, which is the closest we’ve currently got to fixing the root of the issues caused by Natalie’s mutations. There are a few other approved modulators, but Trikafta is the only one that Natalie is eligible to take based on her mutations. This drug was made possible by the contributions from people like you. Words can’t express how grateful our family is for your support of our little girl.
Natalie is such a happy kid, and she brings so much joy to our family. We are so lucky that she’s a willing participant in her CF treatments.
Thank you for joining us in making CF stand for Cure Found!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.