Welcome our Julia! Julia! Julia! team page.
2024 update: thanks to CFF, Julia is on medication that is helping her so much more than anything she has previously tried. She is lucky due to her mutations to be able to take such fantastic medicine to help her live longer but there are still many others that do not have that option yet. So let's keep making strides in the right direction to increase opportunities for all with CF.
Back to the history & facts :):
We came up with this name as our little, beautiful Jules loves when you chant her name...so much in fact, that she dances and smiles when you do it. We believe she loves to hear the chant because she is a fighter and a champion, a gladiator against CF and she will battle and win against whatever CF can throw her way! Julia also loves to dance and run, she is so full of life, she amazes us every single day :)!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. I walk for them and for Jules and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me.
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.