My family and myself knew nothing of Cystic Fibrosis (CF) when my daughter Azalea was diagnosed with it. After being born prematurely at 33weeks, during her stay in the NICU she wasn't digesting well and struggling to gain weight. When her newborn screening came back abnormal, showing two genes consistent with CF, we were sent for genetic testing and confirmed her actually having it. She was diagnosed at 2months old and started treatment. She is now 4 years old and has had multiple hospital stays, but other than those she has been very healthy. Every day we are learning more about how this is affecting our life and may in the future. Yes, my baby is the one with the condition but we as a family stick by her and will fight with her and all the others battling this disease until a cure is here!! My baby girl is a strong little warrior and has an army behind her. We want her to know we all stand with her and this will not stop her!
Join our team and help us get one step closer to a cure for cystic fibrosis!
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease. We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.