Layla's Tomorrow

Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal! 

Our Great Strides Story


April 2016, we were blessed with our first baby girl. After a successful delivery we were anxiously waiting to go home. our baby girl was healthy crying with open lungs and we all spent the day and night with full hearts around family and our new member to the family. Next day we are hoping to go home and waiting for a tiny detail not many people really think about when having a baby, the first poop. Unfortunately, Layla had not pooped yet so we weren't allowed to go home. Fast forward several hours and Layla had spit up green bile, a sign she was backed up and not processing things through her body. Fast forward again a couple days and Layla is in the NICU preparing to have open abdominal surgery to physically remove the blockage that was not allowing her to process things through her bowel. We were given many diagnoses on why this happened but after Genetic testing we were sat down and got a quick but detailed explanation of Cystic Fibrosis. Layla will have to take medication for the rest of her life to help her digest food, medication to help her lung function, and use a vibrating vest for 20 minutes 2x a day to keep her in the best condition we can. Today Layla is 7 years old and participates in Swimming, Gymnastics, CrossFit, Soccer, and loves to be active. Most people (including her parents) would probably never know she has CF by the way she acts, which goes to show how tough, resilient, and mature she is. She is faced daily with 4 different meds daily, constantly being reminded to eat more food, having to wake up early and stay up late for treatments, constant blood draws, and throat swabs. Fundraising like today's event and hundreds others allow us to have these medications that do so much to keep our CF patients healthy. Cystic Fibrosis is truly a diagnosis that is supported by us the people from fundraising and makes a difference in research, medication, and one day finding a Cure.