Dear Family & Friends,
Spring has arrived and with it our wishes to you for a healthy season. Time flies! Jacob just turned 22 years old on March 17th! He will soon graduate from Christopher Newport University on May 13th with a B.A. in History. For his seniorthesis, Jacob is arguing the fundamental role religion played in the American Revolution. He also is conducting research at the Mariners’ Museum for his article on the usage of the Greek Trireme warship in the Peloponnesian War. After graduation,Jacob plans to return to London Downs Golf Club and work for the summer while looking forward to the next chapter in his life.
Early this month, Jacob had a great quarterly appointment in Charlottesville with his lung function continuing to do well.He also met Dr. Albon, the CF adult care physician at the primary care center, who spoke with him about the transition to adult care. In June, he will have his last visit with the pediatric team and will officially be an adult CF patient. What a blessing it is for us to be able say Jacob is an adult with CF. Thanks to world class CF scientists making exciting breakthroughs in research, people with CF are reaching life milestones once perceived impossible. For the first time ever, the median predicted life expectancy is 53 with adults now representingabout 60% of the CF population!
Currently, there are more than 40 treatments in the drug development pipeline including new modulator treatments that will work to correct the mutated CFTR gene. In addition, there are three new clinical trials of mRNA therapies that could improve the lives of those living with CF regardless of their specific mutation. These are just some of the major leaps in CF research, and it represents a significant change in the way treatments are being made with a growing number of them nowemphasizing the correction of the gene instead of sustainment.
Great Strides will be on Saturday, May 6th in Roanoke, Va.We hope you can support us again this year. Our goal is $6,000 for Jacob’s Ladder.
We truly appreciate your continued generosity, commitment, and support to give hope to Jacob and everyone living with cystic fibrosis.
God bless,
Alan, Leigh Ann, Nathan, Olivia, and Jacob
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.