Owen was born on February 7, 2017. He was transported to Cook Childrens' Hospital in Fort Worth on February 8th, 2017 because x-rays showed Owen had a blockage in his bowels. Owen had abdominal surgery for meconium ileus on February 9th. We spent two and a half weeks in the NICU helping Owen recover from surgery. It was during our stay in the NICU that the results of the newborn screen were returned, and Owen was officially diagnosed with Cystic Fibrosis.
The diagnosis came as an enormous shock. How could our perfect baby boy have CF? The pregnancy was perfect. The labor and delivery was perfect. Richard and Keenan had no idea that they were CF carriers. After the shock wore off, Richard and Keenan decided the best thing to do was be positive, research as much as we could, and join the fight against CF. We are committed and determined to make CF=CURE FOUND.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.