Our Journee

Here we are about to participate in another Great Strides event. This year I will be writing the bio myself … as a college student; beating the odds that were stacked against me. Most of you know I have cystic fibrosis and am currently a freshman in college. Before I was a year old they told my family not to expect me to make it to one, then two, and here I am eighteen years later (a semi-adult now) proving every doctor wrong. By the grace of God, it has not affected my lungs to any great extent, so far. However, it does affect me in many other ways. I take five breathing treatments a day to prevent lung infections. I have to take Creon every time I eat something fatty so it does not cause severe stomach pain. My hair was very thin and barely grew at all, the list goes on and so do my medications. One medicine I began taking a while ago has changed my life considerably. My hair started to thicken and grow longer, and for a self-conscious teen girl, this was huge. I have now begun maintaining and gaining weight. As of today, I do not need supplemental milk at all, Praise God! This new medicine is supposed to repair my damaged DNA (the cf gene) continually and maintain my current health. After taking this medication, my family has noticed a big change in my health. I have to say it is doing better than expected and the doctors are amazed at my progress. I also found out a couple of days ago that my lung capacity is 113% (most people who have CF or asthma usually only have 80%!). Without special funding, these medications would not be available to me and are currently extremely expensive. Just one of my medications is in the thousands and this new one is even higher. (Thank God I have insurance!). Ok, here goes. I tell you all this because we are going to participate in the Great Strides walk in Corpus Christi. We hope to help to continue raising money for further trials on medications, so that one day, the CF gene (my Dr is very optimistic this can and may happen in my lifetime), can fully be repaired. If you find it in your heart I ask that you please pray for me and my continued good health. Then, if you would like to make a donation on my behalf or join us in this walk I would be grateful. I would love to know that you support me in my everyday life. We thank you all for your participation, however that may be.

Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe. 

With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.  

We walk in Great Strides for them.

Will you join us?

Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.

To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.

By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!