Meet Colton! He has a huge heart and a compassion about him that others find infectious. He enjoys riding 4-wheelers, riding dirt bikes, fishing, playing video games, playing sports and sharing time with family. When you look at Colton, you will see, what appears to be, your typical 12 year old. What you don't see when you meet Colton is that he has Cystic Fibrosis. You won't see the daily struggles he has, all of the medications he takes, and the hours of breathing treatments he has to do in a week to stay healthy. You would never know that his battle with CF began before he was even born, when his intestine ruptured at 27 weeks gestation. You would never know that at just one day old, he had a portion of his intestines removed, and then had another major bowel surgery at just 4 weeks old. You wouldn't see all of his scars from his multiple PICC lines, nor know that he has had 6 sinus surgeries. You won't see the battles he has fought, and won, while being hospitalized for 10-14 days, fighting a CF exacerbation. What you would see when you meet Colton is that he is happy!!! He is energetic and full of life! He is funny! He is someone who fights daily and has taken control of his disease! He is the image of someone who has NEVER let CF define him!!
This past year was a huge turning point in Colton's CF journey. In August Colton started Trikafta, a miracle drug that has helped the quality of life, for not just Colton, but thousands of other people with CF. He no longer has the chronic cough that he had for over a year, and has gained weight much easier and has even grown in height much quicker then ever before. They are even talking about starting to take away some of his breathing treatment medications, to make his life a little easier. All of this wouldn't be possible without the help of the Cystic Fibrosis Foundation. It would not be possible without all of your continued help and support. It is because of people like you, that miracles are possible. I never thought there would be a time that I wouldn't have to worry about Colton's life expectancy. Now is that time!!!
Please consider making a donation to the Cystic Fibrosis Foundation. Without them, we wouldn't be where we are today. Thank you from the bottoms of our hearts!!!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.