Welcome all and thank you for visiting Zach's Pack Great Strides page! I am grateful for your time and support. Great Strides is a fun event that provides a fantastic opportunity for family, friends, and colleagues to come together to make a difference in the lives of people with CF. To participate, just click on the "Join our Team" button. From there, you can sign up to join our team in walking on May 19th, make a donation and/or start fundraising.
For those who would like a refresher or an introduction to what Cystic Fibrosis (CF) is, please check out this link (or feel free to ask me anything!):
https://www.cff.org/intro-cf/about-cystic-fibrosis
The Cystic Fibrosis Foundation (CFF) has played a crucial role in my quality of life and the lives of countless others with CF. CFF is an integral part of the funding and driving of research and development of critical therapies to help tackle CF. I began taking one of those therapies, Trikafta, when it became available and my lung function and health have never been better.
Despite these extraordinary advancements, there are still those with certain mutations of CF that do not have access to these life-changing drugs.
Along with the progress that has come, there is a need for much more. There is no cure for anyone with CF. There are those with nonsense mutations that do not have therapies that work for them. People with CF are living longer than ever and I want to help keep that progress going.
Any way you choose to support - whether that be joining Zach's Pack for the Great Strides walk, educating yourself or others, advocating for those with CF or other health conditions, or making a donation to Zachs Pack to support the fantastic work of CFF - is amazing and gracious. Please let us know if you'll join us in Milwaukee on May 19th as part of Zach's Pack for the Great Strides walk -- we hope to see you there!
Thank you!
Zach
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.