Hello Team Eddy,
The Burlington Great Strides Walk to Cure Cystic Fibrosis is Sunday, September 17th. We’d love to have you join our team and walk with us…and with Maureen & Kelly. If you can’t make it – then take a minute to donate what you can to help the Cystic Fibrosis Foundation continue working to develop the best new drugs and therapies that our scientists can come up with!
Thank you so much for being a part of Team Eddy.
Join us Sunday, September 17th, Oakledge Park, Burlington
Check in: 9:30 AM
Walk Starts: 10:30 AM
If you are new to Team Eddy, here is our story…Maureen & Kelly, now 24 and 21, were diagnosed with cystic fibrosis 21 years ago – a few days after Kelly was born. Each year since then, we have asked our friends and family to join us in raising money for the Cystic Fibrosis Foundation (CFF). The CFF is our best hope for finding new treatments that will lead to better health and a long life for Maureen & Kelly.
Life with cystic fibrosis has been a bumpy road, filled with daily therapy, thousands of pills to swallow, doctors’ appointments, procedures and hospitalizations. Maureen & Kelly have navigated the ups and downs of that bumpy road like champions. In 2019, a new highly effective therapy for the underlying cause of cystic fibrosis was approved for people with CF who have the F508del mutation (Maureen & Kelly’s mutation). Since taking Trikafta, both Maureen & Kelly have experienced a huge improvement in their health. Today, Maureen is a college graduate and working full-time as a Vet Tech at the Hinesburg Animal Hospital. Kelly is a college senior and spending the fall semester abroad studying at the University of Galway, Ireland! We are grateful to the Cystic Fibrosis Foundation - and to our community of friends and family for helping to make these milestones happen for our family
We invite you to join us on September 17th, or if you can't make it to Burlington, make a donation to the CFF and walk wherever you are - every dollar helps. We are getting closer to realizing our dream of finding a cure for CF.
We are grateful for the support of our friends and family! Go Great Strides 2023!
Wishing you all Good Health!
Team Eddy - Maureen, Kelly, Jonathan & Laurie
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.