Hello family and friends,
We are so excited to be walking this year again as Carter's Crew and we hope you can join us!
It has been eight years since Carter was diagnosed with cystic fibrosis. We so vividly remember going in for his one week appointment completely oblivious to the news that we were about to receive. It is heartbreaking and scary as a parent to get the news that your child has a life-threatening disease with so many unknowns.
There are still days where we are completely overwhelmed by CF, but now there are also moments where we are struck with overwhelming gratitude, thankfulness and an abundance of hope. We have seen how hard the CF community fights and we have seen how much love and support we are surrounded with. Carter has so many people in his corner cheering him on and this is truly what keeps us going. This boy is the most resilient and tough seven year old. There has not been one day where he has complained about his breathing treatment or his multiple doctors appointments. He really does not let anything get him down and we are so proud of how hard he works to keep himself healthy.
We walk because we know that there is more in store for all of those with CF. Real progress has been made in the search for a cure. The new modulator, Trikafta, was a huge stride in the right direction! Although this medicine is an amazing placeholder until we get that cure, we are in the fight until it is done. By walking alongside us in our journey you are helping provide hope for us, Carter and all those with CF. We have every reason to believe that the cure is within reach and we are excited to be a part of reaching the goal.
By joining us you are walking alongside us in our CF journey and we truly appreciate all of the support more than you know!
Brandon, Allie, Carter, Addie, Ava and Aubrey
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.