Our Great Strides Story
Many of you are aware that our youngest daughter, Saylor Joy, was diagnosed with cystic fibrosis at birth. It was an overwhelming time filled with countless uncertainties. Despite facing setbacks over the years, she has been our resilient little fighter through hospital stays, blood draws, CT scans, and surgeries.
Saylor, affectionately known as Punky, our spirited five-year-old refuses to let CF hold her back! If you've had the joy of knowing her, you've witnessed her wild, independent, and downright hilarious personality. Knowing her is truly loving her, and she'll be overjoyed to have all of you there, cheering and supporting her every step of the way!
We walk not just for Saylor, but for everyone battling cystic fibrosis. Your support can make a real difference in our fight against this disease. Click the "Join This Team" button after registering to easily contribute and start fundraising. Together, we're determined to ensure that every person with CF can lead a long, healthy life without the limitations imposed by their condition. We're thrilled for you to be part of this journey with us. Thank you for your support.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.