Team Lupica!
We’re grateful for the love and strength you’ve given our family as we’ve been a part of the cystic fibrosis community – a special community linked by adversity and care, all the while striving for a common goal: a better life for all people with CF. We consider you a part of that community – we couldn’t do it without your generosity.
We are lucky to have a great partner in the Cystic Fibrosis Foundation. Their commitment and innovation have directly led to the development of amazing drug therapies, helping Will and many others to live full lives. However, as much as Trikafta has turned around the lives of so many people with CF, not everyone is helped by it or can tolerate it. The CF Foundation is determined to continue searching for a cure while supporting an array of research initiatives so that no person with CF is left behind.
Last summer, Will and Roxy moved back east from Chicago and are loving living in Brooklyn, New York. Will has continued his math tutoring while pursuing screen writing as well. It’s nice to be able to see them more often! Janie and James are doing great in Cambridge! Janie’s still teaching kindergarten in the public school down the street.
The CF clinic in New York has been amazing! Will has been fighting a cough since October. His doctors have been following him closely to make sure he gets the right medicines. He is diligent about running, when he feels well enough, to help clear his lungs. We are hoping that as the weather gets warmer, his symptoms will subside. We see how much time and effort Will puts in to keep himself healthy. We are so grateful to the CF Foundation for continuing to fund the drug research to help make Will’s life a little easier. We are also so thankful for you all for helping to make this happen!
Thank you, again, for your incredible support and care all these years! Our dream is to have a cure for CF! Thank you for helping keep our dream alive!!!! We are thinking about you and sending all our love!!!
Amy and Greg
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.