Determined for Delilah
June 11, 2024 was a day that changed our lives forever - our perfect baby girl, Delilah was born! She booked a stay in the NICU for a heart condition found during pregnancy, however, the surprises did not stop there. During her NICU stay, the doctors mentioned her newborn screening flagged an abnormality that is consistent with Cystic Fibrosis. With no family history this was quite a shock. When the diagnosis was confirmed a couple of weeks later, our Team at Children's Mercy reassured us Delilah will live the life we had originally imagined for her due to the medical advances. In her mere months of life, Delilah has already proven time and time just how resilient, strong and capable she is!!! And while we have an immense amount of hope for what's ahead for Delilah, the fight will not be over until CF stands for cure found!
As a family, we will be relentless in our passion to fight CF, keep Delilah healthy and happy, and fundraise so all who are living with CF can one day have a cure.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.