Jammin for Johnny

Johnny's Journey 

April 15, 2023 was a day that changed our lives forever - our perfect baby boy, Johnny was born! His entry into the world was early and with a flair for the dramatic. However, the surprises did not stop there.  Shortly after his birth, an abnormality came back on his newborn screening and we were made aware of the likelihood that Johnny would have Cystic Fibrosis.  With no family history and an unaffected 2 year old, this took us by great surprise.  When the diagnosis was confirmed by our Team at Children's Mercy, we were reassured with the incredible medical advancements that Johnny will be blessed to benefit from.  And while we have an immense amount of hope for what's ahead for Johnny, the fight will not be over until CF stands for CURE FOUND. 

As a family, we will be relentless in our passion to fight CF, in keeping Johnny as healthy as possible, and fundraising with all we have so that all people living with CF can live a life uninhibited by this condition. 

We hope you will join us in Kansas City on May 11th! To become a team member, click the “join this team” button. Once you register, it’s easy to donate and start fundraising.  You can also join as a virtual walker and still participate in fundraising if you are not able to be in Kansas City with us.  

Let's do this!