When the boys were born the life expectancy of someone with Cystic Fibrosis was 30.
When they were 5 we were thrilled to learn that it had been updated to 50.
Now the boys are 10 and someone living with Cystic Fibrosis is expected to live a full life!
Research is constantly being done and treatments are being improved. We still have full lung function with no hospitalizations related to CF so far!! We are fortunate for everything the CF Foundation does to support our family and to continue their mission to make CF stand for Cure Found.
We will be walking tomorrow. If you can, please join us either in person, or virtually, to raise awareness for Cystic Fibrosis!!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.