Our Great Strides Story
Abigail (nicknamed “Crabs”) was diagnosed at 2 weeks old with Cystic Fibrosis. CF affects all organs in the body, primarily the lungs and the the pancreas. CF causes thick sticky mucous to build up and block airways. She is on multiple daily medications and more when she is sick. She is unable to digest fat on her own so needs to take digestive enzymes with every meal. This year, she has started the breakthrough drug, Trikafta, and has been doing very well on it.
Abigail will be 3 in December and is a fun and determined little girl. We are grateful that she has remained healthy. She has had a few viral illnesses that go to her lungs and does always take longer to recover from them but overall she is doing great. We are blessed for those who have came before us on this journey and have helped develop the treatments that will help Abby live a longer, fuller life.
A CF diagnosis in this day and age has a whole different outcome that receiving this news 30 years ago and that is because of the Cystic Fibrosis Foundation. The CFF has funded the research into the treatments for CF .
We are hoping to raise $2000 this year to help with research into new therapies. Also, Abigail is one of the lucky CF kids that will be is able to access these treatments. 10 percent of the CF population still is not able to access these modulators due to there specific genetics, so finding treatments for them is their next step. Please join us with your support for the Cystic Fibrosis Foundation and help us move one step closer to a cure.
As a member of our team, you are joining a growing community of people committed to finding a cure for cystic fibrosis. Together, we can make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.