Our son, Adam, was diagnosed with CF when he was one year old. Adam is now a healthy 30-year-old. He is now in his nineth year of teaching at a private K-8 school in Herndon, VA. In addition to teaching, Adam is a personal trainer and owner of Performance 1st, LLC. Adam has maintained a positive outlook on life despite a couple of medical-related "bumps in the road", his daily regimen of breathing treatments and inhaled medicines, and taking over 30 pills a day during the last twenty-nine years. With his full-time teaching position, personal training business and medical treatments, he still manages to exercise daily and takes excellent care of himself.
There is absolutely nothing in this world that will prepare you when you are told that your child has cystic fibrosis. In a second your whole world is turned upside down. But you fight – you make the best of a horrible situation. That’s why our family does whatever we can to promote funding and finding a cure for this disease. We are so blessed to have such a strong support group: family, friends, doctors, and nurses.
There is no cure for CF. CF is the most common fatal genetic disease in the United States. A defective gene causes the body to produce abnormally thick mucus. This mucus leads to chronic lung infections and also interferes with digestion. Tremendous medical advances are being made every day and your support will ensure that children will have a healthy and productive life. To learn more about CF, please visit the Cystic Fibrosis Foundation website at www.cff.org.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? Click on the "Join This Team" or "Donate To A Team Member" button. By becoming a member of our team or making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure. Your gift is 100% tax deductible.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Thank you in advance for making a difference in Adam's life.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.