Dear Friends and Family,
Like most people with Cystic Fibrosis (CF) I have my good days and my bad days. I always strive to have wayyyy more good days then bad, by sticking to my vest treatments and medication regiment. However sometimes that just doesn’t cut it, just after the new year I got hit with a horrible virus that made my whole body feel as though I got hit by a bus. Despite recently feeling better, with more energy, I am still working constently on bringing my lung functions up, since they still haven’t come back from the drop after the new year. My Pulmonary Function tests (PFT) went all the way down to 50% of predicted (the worst they have ever been), I’m usually around the mid to high 70’s. These numbers might not seem significant or meaningful to some of you who don’t fully understand or know CF first hand, but just think about not being able to take that deep breath without coughing while exercising or bursting into laughter only to have a coughing fit. Gasping for air is never comfortable and currently I am living between different antibiotics and tons of treatments.
This kind of coughing and life is not my norm. My norm is excersing at least 3 times a week and not coughing my head off during it. My norm is being able to have a life, with work, friends and trips, and not having CF completely control my life. So I am asking you to donate to the Maddie Mockingbirds so that the research can continue to be made for new strides with medications and treatments to make life a little easier while living with CF. Life is meant to be enjoyed, and my self and all other CFer’s should be right their with you jumping up and down at a concert, not just hearing about it through social media! So please come out to walk with the Maddie Mockingbirds on May 17th in New Canaan and donate to help make life more enjoyable with those living with Cystic Fibrosis!!
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.