Our Great Strides Story
Addison was born with Cystic Fibrosis on April 26, 2017. She has endured and overcome so many obstacles in her 6 years of life so far. 2 surgeries ( the first one at 48 hours old) Nicu for the first 2 months of her life followed by another month long hospital stay after her ileostomy reversal surgery. She does 3 airway clearance treatments every day. Takes over 30 pills to eat. Extra vitamins. 2 nebulizer treatments every day. Add on top of that the constant worry of getting sick from a common cold. She goes to her CF dr every other month which includes a pulmonary function test and blood work.
We are walking in May and raising money to help fund research in finding a cure for CF! We would love to have you on our team! Sign up or donate to help! One day CF will stand for Cure Found!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.