Finley's Party

Cystic fibrosis is close to our hearts because when I was pregnant with Finley at only 8 weeks, I had routine blood work done. Two weeks passed and we received a voice message from the OBGYN stating that one of my blood tests had come back out of range and that further testing was needed as soon as possible. So immediately, Corey and I started stressing, worrying, and praying.

We followed up with OBGYN as soon as they had an appointment open, and they explained to us that I was a cystic fibrosis carrier and that Corey needed to have his blood work done to determine whether he was a carrier or not. So, we had Coreys blood work drawn and sent off. And then for TWO LOOOOOONNNGGG weeks we went through so many emotions waiting to hear back from the blood work. We called I think daily asking if the blood work results were back and got the same response- it would take two weeks and they would call when the results were in- we still called numerous times.

Then, on a Friday afternoon the OBGYN nurse called and had Coreys results in- HE WAS NOT A CARRIER. We cried joyful tears. It takes two genes- one from the mother and one from the father- for the baby to have Cystic Fibrosis. So for Miss Finley she was in the clear.
But just because she was in the clear did not mean that we wanted to forget about something that had impacted us so much and since I was a carrier, we decided we would keep this close to our hearts and do what we can to help anyone with cystic fibrosis.

Miss Finley is a very lucky little girl and is beyond blessed with toys, clothes, and books. So we hope to collect donations for all of her birthdays and send it to the cystic fibrosis foundation. I have reached out to the foundation and spoke to some wonderful people who have given me the contact information for the local North Carolina chapter that we will be able to send our donations to.
Each year we will have an update on the amount donated!

THANK YOU!!!!

Love, Corey, Lisa, Finley and Ellie

And this year our niece Kyra has joined our team !!!! Couldn’t be more proud of her !  

There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?

Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.

Please support me!

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.

With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.  

We walk in Great Strides for them.

Will you join us?

Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.

To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.

By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!