Van Perkins was born September 18, 2014 at NHRMC and was diagnosed with Cystic Fibrosis two weeks later via the newborn screening test. Since then Van has been on a daily regimen of medications and physical therapy to keep him healthy.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Please join us in our fundraising efforts to find a cure for CF. You can either donate to our Great Strides fundraising campaign or joinÂÂ Team VanÂÂ as a walker ( or virtual walker if you don't live nearby) and help us raise more donations.ÂÂ
Thank you for supporting the CF foundation and helping us find a cure for little Van the man!
*Donations are 100-percent tax deductible.
A little about the Cystic Fibrosis Foundation:
The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. They fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.ÂÂ Van is now on the newest and most promising drug to date called Trikafta. It targets the underlying cause of CF--A faulty gene and its protein product.ÂÂ TheÂÂ foundation also helps families like us afford the medications and treatments that Van needs.ÂÂ
The Foundation's drug development success has been recognized by Harvard Business School and by publications such asÂÂ ForbesÂÂ andÂÂ The Wall Street Journal.
The Cystic Fibrosis Foundation is one of the most efficient organizations of its kindÂÂ and is an accredited charity of theÂÂ Better Business Bureau's Wise Giving Alliance.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.