Our Great Strides Story
Alaya was just under a month old when we got her diagnosis of cystic fibrosis. It was an extremely difficult time for us, trying to figure out our new way of life while still trying to embrace the moment and milestones of her childhood. We had to incorporate breathing treatments, enzymes, and chest therapy, which then progressed to a vest and Orkambi.
This past fall, Alaya started on Trikafta! Which is an amazing moment for any person who has CF & is able to take the modulator drug. While it is NOT a cure, it is a step in the right direction. I have noticed so much change in her in so many ways since starting Trikafta.
Don’t you want to be part of the reason Alaya, and so many others, get the cure they deserve? Join our team, donate, & fundraise! You do not have to be in North Carolina to be a walker - there is the option for virtual. If you are able to attend, I encourage it and we would LOVE to share this amazing event with those who love Alaya!
Every single penny counts. Let’s keep going until CF stands for CURE FOUND!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.