Hey friends!
As most of you know, my youngest daughter, Chloe Parker, was diagnosed with Cystic Fibrosis just days after her birth. Now, at the ripe age of 9 years old, she’s a thriving kid/daughter/sister/granddaughter/dancer/etc.
It’s taken surgeries, hospital admissions, countless medications and doctor’s appointments, daily respiratory therapies, and an endless supply of fried chicken to get to this place. One medication in particular, a gene therapy called Trikafta, has been our little “miracle drug” – it’s helped Chloe Parker keep her lungs clear and has kept her out of the hospital from first use.
Unfortunately, this gene therapy isn’t a cure. Even worse, it’s not even available to all Cystic Fibrosis patients (as it’s mutation dependent). To help fund the research for a cure and to make life-saving medications, like Trikafta, available to everyone in the CF community, our family is participating in the Great Strides fundraiser to raise money for this cause.
We’d love to have your support!
Love,
Chloe Parker and family
Did you know there are approximately 40,000 Americans living with cystic fibrosis? They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe.
We walk for them... Will you join us in our cause for a cure?
Please support our mission to “add more tomorrows’ by making a donation to our fundraising goal and/or join our team to do your own fundraising!
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis.
Our Great Strides Story
We walk for a cure for all people with cystic fibrosis. By joining our team, you can help us end this disease!
To become a team member, click the “join this team” button. Once you register, it’s easy to donate and start fundraising.
Our team is determined to ensure that every person with CF can live a long, healthy life, without the limitations caused by their disease. We can’t wait for you to join us.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.