Dear family and friends,
We are excited to start this year’s fundraising for Cystic Fibrosis foundation and see everyone at the walk!
As you know Abby was started on a new medication called Trikafta and we are seeing some improvment. It will never restore the damage CF has done to her body but it gives us hope her lungs won't deteriorate as quick. It is too early to say if there will be any complications but we are taking it one day at a time.Her breathing at night is not as labored and that makes our hearts full. Abby has been swiming on a swim team and is able to keep up with her teammates which is really impressive. These great strides in CF medications and treatments would not be possible without your support and donations. We would like to thank you all! Below is Abby's story if you would like to read it.
The Cassidy Family
Abby's story
Abby was diagnosed with Cystic Fibrosis (CF) when she was only one week old. From then on it has been a roller coaster kind of journey. From sweat tests to DNA tests to treatments and check ups every 2-3 months kind of journey. CF is a genetic desease in which body makes very thick, sticky mucus. This mucus can't be cleared by the body and it causes problems in the lungs, pancrease , and other organs. She had her fair share of struggles to gain weight like the doctors wanted her to, respiratory infections that kept us praying her lungs wouldn't get worse, and doctors' visits that absolutely terrified her when she was little. She is almost 14 now and over her fear of doctors and procedures. Well maybe except for throat cultures because she still doesn't like those :-))
She loves summers and swimming in the pool. She still loves her stuffed animal Cedric who's been by her side and traveled lots of places with her.
This year we are walking to support Abby and all others who battle Cystic Fibrosis on daily basis. She appreciates every one of you who can join her team, donate or walk for cure.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.