My Great Strides Story...
Being told your unborn baby may be likely be facing a full-blown lung transplant by the time she's a teenager because of the cystic fibrosis gene that we carry is nothing short of heartbreaking. When Faith was born, I worked so hard (along with her team and our family) to ensure she had everything she needed, that we did exactly as advised for her treatments and medications, I went to conferences to hear and see the latest advancements and we did what needed to be done! Throughout all these years, it's been amazing to watch Faith grow, be able to do just about everything she wants that this adventurous life has to offer and she's been able to stay healthy BECAUSE of the continuous efforts, trials and research supported by the CF Foundation (and prayers and hard work)! Almost every medication she's on we've watched come up through the drug pipeline since she was a newborn and those of you who've helped donate have been a part of it!
The fact is though, that she still has CF, it hasn't gone away. Even though she's a teen, learning to adult and also rebelling about it all some, she still fights it every day and she still needs a CURE!
Nearly 40,000 people in the United States now have cystic fibrosis. Thousands of people are suffering and fighting to breathe every day.
Due to her age and some changes that occurred, we took a few years off of fundraising, while still keeping in the loop of info and our local CF families. We've given her the space to "breathe" and grow, to deal with it on her own as best I can hand over the torch and not hover...it's hard, still working on that for myself!
****Will you once again (or for the first time maybe) JOIN US in supporting Faith and those with CF by making a DONATION to our TEAM FAITHFULL? Our family will be walking again this year on April 13 morning at the CHP Academy in Sacramento.****
You have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history!
Simply click the "Join our Team" to fundraise & walk with us or choose a name on our team to make a donation! Thank you SO much!!!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.