Driving Miss Desi

Welcome to our Road Trip!

Thank you for sharing in our goal for More Tomorrows for Desi!

Come walk with us on May 4th plan to arrive BY 9:20am we will have a team picture and tailgate before the walk starts.

10am- the walk begins. It is a very short, and leisurely, walk around Campus 805. Bring your children, strollers or wagons- the more the merrier!

Come for as little or as long as you like! 

We'll have water, snacks, corn hole and activities for the children.

You bring a smile and walking shoes (and sunscreen!) ! 

This is a fun, family-friendly morning spent walking with like-minded friends and encouraging those living with cystic fibrosis and their families. Come join our 'road trip'!

WHY WE WALK:

Your friendship and firm commitment has been incredible...together, we've raised over $310,000 and seen two drugs now available for many of those battling cystic fibrosis! Real progress has been made in the search for a cure, but we are not finished!

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A behind the scenes:

775- how many pills Desi swallows every month. She takes these before each meal in order to give her body the ability to absorb fat and nutrients from food. She must eat a high calorie diet as putting on weight is a constant challenge and is directly linked to her lung function.

60- how many minutes a day are devoted to Airway Clearance Treatments when healthy. (120 minutes/day when sick) To do this she wears a vest and is connected to a machine that will shake her to help move the mucous in her lungs.

9- how many medications and supplements she is on to help her body function.

6 feet- The minimum distance Desi has to keep from others living with cystic fibrosis. She can't have playdates or get together with others that understand her life (due to infection control).

8- How old Desi is

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WAYS TO MAKE AN IMPACT:

To walk with us at the event: click on the 'Join our Team' button and select 'walker'. From there you can make a donation and/or start your fundraising. Joining our team is free and does not require a donation or fundraising, however, fundraising IS encouraged! The more resources we have for research the better!

Can't walk at the event but still want to support: Walk for Desi in your neighborhood and send a picture! (even better if you are wearing a team Driving Miss Desi shirt!)  Email: TeamDrivingMissDesi@gmail.com

To Donate: Click on "Donate to Jamie and Ross" at the top of the page. We gratefully appreciate your donation and your passion for furthering research!

Invite Friends to Donate: When you register to walk (in person or virtually) it will give you a link you can share online or with friends. Invite them to share in your hope and fund more research for cystic fibrosis! 

Sponsor Team Driving Miss Desi: We love showcasing businesses that actively support advancing research and spreading the word about Desi! 

As a sponsor we love to sharing about your business on social media and at the walk! Many levels of sponsorship include signage of your business, or name, on shirts as well!

Email TeamDrivingMissDesi@gmail.com for more detailed information.

Thank you for the constant prayers, hugs and words of encouragement for our family. Your support and fundraising dollars are giving us everything our family needs- more memories with Desi.

-Jamie and Ross Roney

Instagram at @DrivingMissDesi

Email: TeamDrivingMissDesi@gmail.com