Trevor is 19. While that sounds like a youngin' to me it's pretty old in the world of CF. Imagine in the 1950s being told your kid wouldn't live past grade school? And now, on the cusp of helping nearly 90% of people living with CF things couldn't be more different. We are still fundraising. Nothing is guaranteed. Science is sickly expensive--and it's a requirement to getting CF care to help 100% of CFers.
If you are on this page you likely have been doing this walk along side us for years. Your charity and loyalty are recognized and appreciated beyond measure. Thank you.
If you are new to our page, WELCOME! and thank you for your interest and intention to help change the future for Trevor and all those living with cystic fibrosis. Research is the name of the game these days.
We have been doing this walk for 18 years alongside the best people we know. We have distributed almost $2 million to the CFF over these years and it wouldn't be possible without you. We now fundraise for Team Trevor, our very own 501c3 charity, which allows us greater flexibility in events and greater control over where the research money goes. Yay us! Yay you!
We hope to see you on the 20th of May to walk in honor of Trevor. If you can't join us please consider donating anyway. We will walk on your behalf, with pride. If you can't go but would like to help us achieve our goals please visit www.teamtrevor.org and make a donation to Team Trevor.
We know we are fortunate to be help up by you all. And we are so proud of Trevor for his stoicism. We look forward to the day when he can enjoy modern medicine's miracle meds. One of thse years we hope to throw a major, massive bash to celebrate Trevor's rare mutation being included in the approval of a CF med that will truly redefine his health...that will be a glorious day.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.