Our Great Strides Story
Riley is our 4 year old son who has Cystic Fibrosis. Between last year’s walk and now Riley was on a special nebulizer treatment to fight off Pseudomonas bacteria that added 30-40 minutes to two of his regular SmartVest treatments that he does everyday. He did those through December when we got word on Christmas Day that he was clear of the Pseudomonas (for now). It was an awesome Christmas present, taking at least an hour and a half to two hours of treatments off our daily regimen. Even with those removed, he still has been on an increased treatment regimen of 3-6 treatments a day instead of just 2 per day because in typical 4 year old Riley fashion he licked a handrail at a Charger’s football game on Oct. 1 and got sick the very next day. We have pretty much been on an increased treatment regimen since then with only about 20-25 ‘healthy 2 treatment days' thrown in here and there.
He looks and acts pretty great when we are out and about but the coughing and bringing stuff up and difficulty at night are among the things you don’t see. He is a true little warrior but he needs help, YOUR HELP. He needs a cure and you can help make that cure closer to being found by joining our team and/or making a donation to our Great Strides team.
By becoming a member of our team and/or making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising if you choose to. Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Our walk this year will be at NTC Park at Liberty Station on Saturday June 2nd, so please come out and join us!
If you can’t walk with us then please support us (and Riley) by making a donation to our Great Strides fundraising campaign today!
Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
|RSVP for a CF Cure! - Join Team||Raised|
|Jennifer Van Pelt||$1,153.00|
|Eric Van Pelt||$445.00|
|Denotes a Team Leader|