Our Great Strides Story
Our story with Cystic Fibrosis start shortly after Aug. 30 2013 when our son Riley was born. We had driven 30 hours straight across the country to get there for his birth and saw him for the 1st time when he was 10 minutes old! We were already in love but there is nothing that can describe the well of love and emotion when they first put him in our arms. A few days later when they told us the blockage in his intestines most likely meant he had Cystic Fibrosis and asked if we wanted to continue with his adoption we were astounded. Not at the diagnosis but that they thought we would back out. There was never any question, our hearts were Riley's the minute his birthmom told us she had selected us as the adoptive parents for her son. We really had no idea what Cystic Fibrosis was or what it would mean for our lives and more importantly for Riley's life, but it didn't matter, we were his parents and we were/are in it for the long haul! We want it to be a LONG, LONG haul! We want Riley to have a LONG, HAPPY life full of doing and being anything and everything he ever dreams of doing and achieving! For that to happen we need a cure. We need advances in treatment. That is why we are raising money for the CF Foundation, they do so much for the fight, families and those living with CF, please help us make a difference.
Riley went three and a half years without having to be hospitalized but in Jan. 2017 he got sick and just couldn’t get better this time. In February he was admitted for his first hospitalization. He had his first operation to place a PICC line for IV antibiotics and was in the hospital for 2 weeks. Riley also cultured ‘Pseudomonas’, a bad bacteria, in his lungs so in addition to his daily chest therapy treatments he also needs a special nebulizer treatment to fight off the Pseudomonas bacteria, this adds 30-40 minutes to two of the treatments that he does everyday. He will do these treatments until we can get rid of the bacteria but have been told it may never go away and so these may just be a part of his life from now on, just like the enzyme medication he has to take before he eats anything to help him process the nutrients in the food.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
If you can’t walk with us then please support us by making a donation to our Great Strides fundraising campaign today!
Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.