Our Great Strides Story
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Our son Colby was born September 3rd, at 3 weeks old he was diagnosed with Cystic Fibrosis. We have been living and coping with this disease for over a year now. We have learned it means daily medicines, therapies, and extra doctor appointments to keep our little boy healthy. CF is a genetic condition passed from both parents. I feel guilty everyday knowing that we gave him this disease which will cause him lifelong suffering. Our son is a vivacious and precocious little boy. He lives every moment of each day to the very fullest, wanting the know the how and why of everything. His smile can light up a room, his laugh can transform the saddest day into joy. We joke that he is trying to cram a full life into the shortened span he has been allotted. We are taking one day at a time, not trying to look too far into the future but to just enjoy each moment we have with our amazing Colby.
He is the reason we walk. He is the reason we keep fighting. He is the reason we will not stop until there is a cure found.