Our Great Strides Story
CF is a devastating disease for anyone, but when my best friend Mark and his wife Amanda were dealing with this in a newborn, I realized just how bad it was. They had twins, one with CF, the other without. They are 6, the same age as our son Ethan. It’s been a challenging road for them and it’s amazing how gracefully they’ve dealt with Emy’s disease.
A lot of significant advances have been made…and just in the past few years! There remains pretty exciting science and CF is one disease that could be cured within our lifetime. Coincidently, since the CF population is relatively small, it does not qualify for the federal support like many of the other diseases out there. The CFF runs extremely lean, with $.90+ going directly towards research and support…this is nearly unheard of. The long and the short of it is, your donation will have a direct impact on people suffering from CF.
There's nothing more precious to us than our children; their well-being and safety weigh on us each day. Helping a child breathe easy is important work and there are a lot them counting on us. Thank you for your generosity and support.