We made it past the first year, and though it was hard and at times very emotional, we got through it! Our beautiful Olivia is 17 months old now and while she has a much different daily routine than the average 17 month old, she is thriving and acomplishing so much. At 14 months old, aside from teaching Olivia how to use a spoon and stack blocks into a tower, we taught Olivia how to swallow pills and strap herself into her airway clearance vest. Every new task, medication or test we have to add or complete, Olivia does it with the biggest, 4 toothed smile. We are amazed by her everyday.
So far over the past 17 months, Olivia has taken about 5,530 pills, 332.5 ML of medication through oral syringe, and sat through over 250 hours of chest physio therapy (She does two 30 minute sessions a day!) This is just the tip of the iceberg - We are fortunate and blessed that Olivia is healthy right now, and so treatments for her are minimal. Yes, all this is minimal compared to what she will eventually do everyday and what many living with CF already do. Many spend hours a day doing treatments and take handfuls of pills, while others need to spend weeks in the hospital on antibiotics. This is why we fundraise. This is why we are apart of Great Strides!
Right now, there is no cure for Cystic Fibrosis. Treatments, medications and medical advancements have helped move the life expectancy to 47 years – but that is not enough! But, only 50% of people with cystic fibrosis are over the age of 18 years old. We don't want want a 50% change that Olivia will make it to 18 years old. This is why we fight. This is why we fundraise. When you donate to the Cystic Fibrosis Foundation, you are helping to fund research that adds more tomorrow to Olivia’s life and everyone else with Cystic Fibrosis. You are also helping to fund a cure. And we need a cure!
Olivia was born in September 2017, and it was one of the greatest days of our lives. Our family of four was now complete and we couldn’t be happier! However, when Olivia was just 9 days old, we got a phone call that changed everything for our family. Olivia’s newborn screening came back and she tested positive for Cystic Fibrosis. While we are devastated by this diagnosis, we are committed to not letting this disease define or overcome Olivia. In these 17 months we have learned so much and are forever grateful for the community and army we have built around our family.
The smallest donation can make the huge difference.
We are hopeful for the future. We are grateful for all of you who are apart of Olivia’s Team. We cant do this without you.
How can you help Olivia?
Walk with us! Come join us on April 14th and walk with Olivia! Registering for our team and walking is FREE! However, your donations are very much appreciated!
Donate! Any donation that you can make to our team is SO appreciated. No donation is too small or big! $1, $5 $20 $100 every penny counts and brings us that much closer to life extending treatments and medicaitons.
Share! Sharing Olivia’s story is so important to us, as well as to the Cystic Fibrosis community. Even though 1 in 31 people are a carrier of CF, many people do not know much about the disease, and most have never even heard of it! By sharing Olivia’s story, you are spreading awareness about CF and helping to create change and make a difference to the CF community!
Become a virtual walker! If you can’t join us in our walk, you can still join our team by becoming a virtual walker! Click on “join my team” and pick “virtual walker”. Once you do, you will also be given a link so you can share online to help us raise donations and awareness!