Siobhan's Page

Team CF Superheroes

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Fundraising Progress

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Raised: $1,596.00

Goal: $5,000.00

My Team CF Story

This year I am running the Chicago marathon with the Cystic Fibrosis Foundation. Right now, CF is a disease without a cure. There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.

My cousins John and Paul are living with this incurable disease. When Paul was six months old, he was rushed to the hospital because he could not breathe on his own. The doctors told my aunt and uncle that there was nothing they could do. Not long after, my cousins were both diagnosed with cystic fibrosis. John and Paul had to be hospitalized for antibiotic IV clean outs multiple times a year to keep them healthy.

The Cystic Fibrosis Foundation funds research that directly supports people living with the disease. The foundation helped put the life changing drug, Kalydeco, on the market. Because of this drug, John and Paul have not been hospitalized in 8 years. They are now 24 and 21 years old.

Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease, but together, we can help add tomorrows to the lives of people with cystic fibrosis. I hope my $5,000 will be a small part in helping CF stand for cure found.

Will you join me?


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