Big news!! Eva is starting Orkambi! This was a difficult decision for Tim and Susan but the risk of side effects overweighs the possible benefits to her weight gain and lung function. She has suffered this year with serious lung infections and some damage is starting to show up. Please pray that this medicine will be sucessful.
Thank you for joining our effort to raise money to fund a cure for CF. This has been a very challenging year for her. She entered a new school and it has been an adjustment for her to make new friends and comply with her medical regime. It has been a real challenge to monitor her medications and eating through the teachers and school nurse. Susan, Tim and Cal continue to smooth the path for her in school. She participated in basketball under the watchful eyes of her family and enjoyed it. She is also playing soccer.
Her weight and absorption of fat continue to be serious issues and we constantly battle the caloric intake and the adjustment of her enzymes. She has battled a few respiratory illnesses and we had a big scare with the flu but, as usual, she powered through with the love and support of her family and medical care team. She suffers almost daily with gastric pain; and it is so hard to watch her in pain and not be able to help. It takes a toll on her and her family. We need a cure NOW. We are close to having medicines that will correct her genetic defect and allow her to fully live life. Please donate to continue this critical and miraculous research!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.