Jack's Attack Pack
We walk for Jack a vivacious, imaginative and entertaining 6 year old who suffers from a genetic disease called Cystic Fibrosis with Allergic Broncho Pulmonary Aspergillosis and Distal Intestinal Obstructive Syndrome. This disease is fatal and has no cure...yet.
With your help, our cure WILL come. To meet Jack you would never know the extent of what he goes through every single day. When you meet him he is happy, engaging, funny and quite the fact sharer. He looks like every other 6 year old out there.
What you can’t see is he takes about 712 pills per month and 248 doses of liquid medications, he also does 180 nebulized treatments or more monthly and 2-3 hours of physical therapy every day. All told he spends 4-6 hours every day working to stay alive.
The kinds of medications Jack must take daily are enzymes to help him digest food, antacid to reduce reflux and help him digest food, laxatives to promote bowel movements and reduce risk of intestinal blockage, mucalytics to change the viscosity of his mucus, vitamins 20-30,000x daily value due to poor digestion and absorption, Chest Percussive Therapy to move mucus out of his lungs for him, ihalers to open his airways and when ill the list grows longer. Jack must eat a minimum of 2,400 calories per day in order to maintain weight and a higher volume in order to gain and grow.
Jack got to try Orkambi this year and within a week of starting had a severe allergic reaction. He can not take the newest miracle med and needs research to continue to work to save his life.
Other children his age have had a far more epic battle thus far, many having feeding tubes, intestinal blockages, multiple surgeries and more. I am thankful for Jacks health and ache for the parents who's battle has been lost or harder than ours. A cure MUST be found. This is a disease that attacks our children and takes away from the most basic of human needs, the ability to take a breath. Most CF children equate thier breathing to feeling as though they are sucking air through a straw.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us?Support us by making a donation to our Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.