Aja's Amigos
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Dear Friends and Family,
Our Austin Great Strides walk supporting cystic fibrosis research is only 2 days away. As many of you know, Colt and Willow have cystic fibrosis, which is a progressive, genetic disease that causes persistent lung infections, limits the ability to breathe over time and causes digestion difficulties. We hope you can come join us in our search for medicines that will help them breathe easier.
To learn more about cystic fibrosis, watch our Harry Potter themed YouTube video with the latest research results: https://youtu.be/A7gusGIaixI
Our family just went LIVE on the Austin news to bring awareness to the CF Foundation and the Great Strides walk. Watch the segment and see Colt talk about his treatments here: https://cbsaustin.com/features/we-are-austin/taking-steps-to-fight-cystic-fibrosis-until-its-gone
Please help support the funding of the upcoming trials to help our kids have a healthy life. You can join us at our walk at the Austin Zoo on May 4th with registration at 9am and the walk starting at 10am. If you’re not in Austin, then you can go to your local Great Strides walk or support us with a donation to our team. Sign up here: http://fightcf.cff.org/goto/Aja2019
We can’t wait to start the clinical trials that will help Colt and Willow and we appreciate any donation you give to push the research further!
Love,
Nicole, Dan, Colt and Willow
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Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.