are approximately 30,000 Americans living with cystic fibrosis. They are moms,
dads, sisters, brothers, daughters, sons, friends and co-workers who struggle
every day just to breathe. We walk for them. Will you join us? There are two
ways you can become a member of our National Family team.
Thank you for all the continued support over the years. Hard to believe its been 4 years since Jon and Emily's diagnosis. Well a lot has happened in those years, good and bad. Jon's CF-related Chronic Pancreatitis progressed and his health continued to decline. Then a miracle happened. An procedure became available for him, a Total Pancreatectomy and Auto Islet Cell Transplant (TP/AIT). Yes that is right Jon does not have a pancreas anymore, hence no more pancreatitis. So now his health is improving, slowly, but improving. Emily has been starting to feel the effects of CF on her health. She is doing well but there has been a definite change in the progression of the disease. Last year we took off from fundraising because we were a bit busy with Jon's medical care. But, we are back and with strength. With Vengence against CF! So we need your help.
You can join any of our teams across the country as a walker and help fundraise
by clicking the Join Our Team Button above.
You can lead your own team under our National Family team in a walk local to
you and help recruit others to walk with you by clicking Find a Walk and
following the prompts to register for a walk near you.
becoming a member of our team and making a donation, you are joining a growing
group of people committed to finding a cure for cystic fibrosis. Together, we
are adding tomorrows to the lives of people living with CF by supporting the
search for a cure.
Strides is a fun, family-friendly event that raises awareness and support for
people with CF and their families.
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Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.