Our Team CF Story
Thank you for visiting the Uptake/Cystic Fibrosis Foundation page!
The purpose of this page is to make a difference in the lives of people living with CF.
WHAT IS CF?
CF is a rare, genetic disease that causes an excess of mucus to accumulate in your body, and serious breathing problems (your lungs cannot properly clear the mucus causing cysts, infection, and often lung transplants). The hardest part of the disease is maintenance: 4-5 hours of treatment daily, 2-3 week hospital stays every few months, 50-odd medications. There are approximately 30,000 Americans living with CF.
I was first made aware of this disease by this really incredible young lady named Claire Wineland. Claire passed away last year at the age of 21 from a stroke following a double lung transplant. Her wisdom and approach to living a life you are proud of, was truly beautiful. I reccommend watching this video Claire made:
HOW DOES THE CF FOUNDATION HELP?
In nutshell, the foundation helps fund the research behind life saving CF treatment.
The Foundation has built a robust pipeline of approved and potential therapies that tackle CF from all angles, including drugs targeting the underlying cause of the disease. Nearly every drug recommended for CF was made possible because of CF Foundation support. They support the best research on both national and international fronts and from bench to bedside -- funding work on potential therapies in the laboratory and facilitating clinical trials to inform specialized care at CF Foundation-accredited care centers.
Read more on the research here:
WHAT CAN YOU DO?
1. Click "Join our Team."
2. From there, you can make a donation, and start fundraising.
TO COMPETE IN THE TRIATHALON
1. Uptake has generously offered to cover our Triathalon registration cost. If you want to join the team, email firstname.lastname@example.org, and I will forward the instructions to expensify the registration cost. To compete on the Uptake team, you will need to fundraise (no minimum) towards the cuminative Uptake raise target of $2,000, stretch goal $5,000.
2. Although there is no there is minimum raise amount to be on the team, I would like everyone to set a personal goal of at least $250.
By becoming a member of Uptake's Tri Team and donating, you will help support lifesaving research and medical programs in the search for a cure for cystic fibrosis.