My Team CF Story
There are approximately 30,000 Americans living with cystic fibrosis -- a rare, genetic, life-shortening disease. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe.
My good friends, Kelly and her husband BJ, have a beautiful little girl named Kamryn - she is one of these fighters. She was born 6 weeks early due to complications of cystic fibrosis (CF). Kamryn required 2 surgeries and 41 days in the NICU. Kamryn, and her parents, are amazing fighters and she is now 2 years old and loves to swim in the pool and play with her cousins.
Some gene therapy medications came out in 2012 to help patients with certain gene combinations. Kamryn has the genetic mutations DF508 and G542X. Her gene combination does not have a medication yet. However, because of the Cystic Fibrosis Foundation and research being done, there is one in the pipeline for expected FDA approval in the near future.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. Together, we can help add tomorrows to the lives of people with CF. This year, I am running the Chicago Marathon with the goal of raising $1,250 for the Cystic Fibrosis Foundation to support Kamryn and all of the other children and adults living with CF. The Cystic Fibrosis Foundation supports those affected by CF and funds the research necessary to develop these new gene therapies and help improve the quality and longevity of the lives of people with CF, donating $197 million towards research grants last year.
Please consider helping me in my quest to the finish line by donating to the Cystic Fibrosis Foundation so that no CF patient is left behind. Your gift will help support lifesaving research, medical, and education programs for CF. Will you join me?
Let's add tomorrow's together. Your support means so much!