My Xtreme Hike Story
Cystic Fibrosis SUCKS. Here's the deal...
Cystic fibrosis is a rare, life-shortening, genetic disease found in about 30,000 people in the U.S. Sixty years ago, most children with CF did not live long enough to attend elementary school, but thanks to Foundation-based research and care, many people with CF are now living into their forties.
This is the REALLY good news from this spring:
Approval of the triple-combination drug could, over time, expand therapies which treat the underlying cause of the CF to more than 90 percent of people with the disease.
YOU have been a part of this milestone! All the support and donations over the past few years has had an impact in our small, scary world. Thank you all so much for your help! We've come so far! BUT we still have more money to raise and research to support. Please continue to join us as our dedication to ending this disease rages on!
This year, Bryan and I are hiking a very big mountain to raise money and awareness -- the stadium climb is just a training session. Please support me by giving to my Xtreme Hike fundraising campaign today.
About Vivi -- we have been so lucky these first few years to have a really healthy, happy kid. This past year, she's chased chickens, ridden a pony, and helped a couple of crawfish escape death by boil! She has crushed swim lessons this summer and could give Elaine from Seinfeld a run for her money with her unconventional dance moves. We are bracing ourselves for preschool. While we're ALL ready for this milestone, it's nerve-wracking. Kids are gross. Kids are germy. Vivi will be exposed to so many more germs than ever before. But she is ready. Time to take a deep breath and jump in... Hopefully, a gene modulator that could help her will be approved by the time she is 6yrs old. It's really possible! Thank you for helping us make strides against this cruel disease!