My Xtreme Hike Story
Thank you for taking a moment to visit my fundraising page for the Cystic Fibrosis Xtreme Hike 2017. Please consider supporting finding a cure for Cystic Fibrosis by donating and/or sharing this page with someone you know.
I hike for my son Anthony who is 7 years old. I hike to demonstrate passion, courage, fight, hope, and most importantly to remind him of the love and support that surrounds him.
Anthony was diagnosed with Cystic Fibrosis through the Newborn Screening at two weeks old. His fight with Cystic Fibrosis began with a hospital stay at 3 months old and hasn’t stopped keeping us on our toes. Considering Cystic Fibrosis is a life-threatening disease I rather not be repetitious and tell you about all our CF struggles but about Anthony himself. He is a smart little boy full of strength, his courage often leaves me speechless, and he has a heart full of love. While he is a small statured boy, he has a large personality, and a heart that touches all those around him.
Before I wrap this up I would like to share with you a direct result of your support and prayers:
One month after the 2016 Xtreme Hike the first major medication was FDA approved (Orkambi) for children 6 years and up with the same mutations as Anthony has. His lung function has never been so high, he is consistently gaining weight (officially on the growth chart!), and improving his overall health with the help of Orkambi.
Thank you all for your love, thoughts, prayers, and finacial support with these fundraising events! We couldn’t do it without you!
There are approximately 30,000 people in the United States living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I hike for them, and hope that you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short.
I am participating in the Cystic Fibrosis Foundation’s Xtreme Hike to help raise funds and awareness for cystic fibrosis. Will you considering supporting me today?
Help me reach my fundraising goal by donating to my Xtreme Hike fundraising campaign. Your gift will help add tomorrows to the lives of people with CF.