My Xtreme Hike Story
The medical break throughs over the past few years have been incredible. A cure is within reach!!! We are not grasping at straws this is happening.
Tristan has the D508F and R1066H mutations. There is not a drug available for his mutation combination at this point. With your help there will be soon. We will be moving back to North Carolina this summer. We also will be going back to UNC at Chapel Hill for Tristan's CF clinics. UNC is one of the best research hospitals in the country, we will get Tristan involved in any studies available. The R1066H mutation is very rare so it is essential to get the mutation included in these studies.
Help us find a cure by donating, join the hike, help fund raise by being a virtual hiker, become an organ donor or simply forwarding this on! There are also opportunities for company sponsorship. Donate today for more tomorrows.