My Xtreme Hike Story
As many of you know our granddaughter, Olivia, was diagnosed with cystic fibrosis at age 1. Livi is currently 12-years old and is an active middle schooler who loves adventure, plays volleyball and basketball, which is her first love. Livi is a determined young lady who loves animals and wants to be a veterinarian when she grows up. Cystic fibrosis does not define who she is. Will you help me add more tomorrows for Livi.
Currently, Livi does 2-hrs of vest treatment a day and takes over 35 pills daily to keep her healthy. This is not a cure, this is preventative to keep Livi out of the hospital and the disease at bay.
Cystic fibrosis is a rare, life-shortening, genetic disease, which causes persistent lung infections and limits the ability to breathe over time. Sixty years ago, most children with cystic fibrosis did not live long enough to attend elementary school, but thanks to Foundation-based research and care, many people with CF are now living into their forties – achieving milestones once thought not possible, such as attending college, pursuing careers, and having a family of their own.
The Cystic Fibrosis Foundation has made significant progress in funding innovative treatments for CF. Livi is currently on Orkambi, which is a life-changing drug for those with cystic fibrosis and is direct result of funding from the Foundation's fundraising efforts. The CF Foundation receives no federal funding and relies solely on special events. That is why on April 27th I will embark on 30.1 mile hike on the Appalachian Trail to aid in finding cure for cystic fibrosis for Livi and for everyone living with this disease.
The hike begins in Damascus, VA and ends in Grayson Highlands State Park. It will take me anywhere from 10-14 hours and has an elevation gain of 7,200 ft, but that is nothing in comparison to the amount of time and effort Livi has put into staying healthy through her treatments. On April 27th, I will come off the mountain after 30.1 miles but those with cystic fibrosis will still be on their mountain.
Please make a difference and support me by giving to my Xtreme Hike fundraising campaign today. My goal is $3,000 and our group is looking to raise over $400,000 in the name of a cure – any amount that you can donate is greatly appreciated and is 100% tax-deductible and would mean the world to my family.
Jean Jones, Olivia and the Jones Family